10 Ways Getting Involved in the Type 1 Diabetes Community Has Helped Our Family
When my youngest child was first diagnosed with Type 1 Diabetes (T1D), our world was turned completely upside down. I’m sure most parents reading this now can remember a similar feeling. There were so many new things to learn- carb counting, injections, sleepless nights- and it often felt like we were in this little bubble, navigating it all on our own.
What I quickly discovered, though, is that being part of the T1D community changes everything. Meeting other parents who got it, seeing my child make friends with other children facing the same challenges, and hearing practical advice from those a few steps ahead of us- has been invaluable. Over the years, these connections have given us confidence, encouragement, and a real sense that we are not alone in this.
That’s why I wanted to share some of the best ways to get involved. Here are 10 ways that families can connect with the Type 1 Diabetes community- each one has benefited us in different ways, and I hope they’ll help you too.
1. Join UK Facebook and Online Support Groups
Some of the best advice I’ve ever received has come from other parents online. UK-based Facebook groups like “Parents of Children with Type 1 Diabetes UK” or local community groups are brilliant places to ask questions, share the daily highs and lows, and get quick reassurance from people who understand.
For teens, these online spaces can also be a great place to connect with other young people- sometimes advice lands best from peers their own age.
2. Take Part in a Breakthrough T1D One Walk UK
The first time we joined a Breakthrough T1D (formerly JDRF) One Walk, it felt like stepping into a sea of understanding. Families just like our, children testing blood sugars openly, CGM’s on display on the back of arms, blue balloons everywhere- it was powerful. These walks raise money for vital research, but they also give families like ours a chance to feel part of something much bigger.
3. Connect with Local Hospital and Community Groups
Many NHS hospitals and charities run coffee mornings, family meetups, teen evening sessions, or activity days. Sometimes it’s as simple as swapping numbers with another parent at a hospital event, your child seeing other children manage their diabetes, or teens having the opportunity to talk with others who are also juggling school, friends, a social life and T1D- that can for meaningful connections.
4. Try a Type 1 Super Saturday event
We’ve loved the Diabetes UK family weekends. They offer fun activities for children, confidence building workshops for teens, and practical sessions for parents. They have now launched Type 1 Super Saturday- a fantastic one day free event created for the whole family in mind-young people with T1D, siblings and parents or carers.
5. Follow UK T1D Bloggers, Creators and Podcasts
Sometimes, reading or seeing someone else’s similar journey or daily T1D life routine can provide comfort. Following T1D creators has helps us feel less isolated and more empowered.
6. Fundraise Together
Whether it’s a cake sale at school, a sponsored walk, or a community raffle, fundraising has brought our family and friends together. It’s not just about money- it’s about awareness and giving our child a sense of pride in showing others what living with T1D really looks like.
7. Explore Diabetes Camps and Activity Breaks
Have your child attend a diabetes camp with medical staff trained in diabetes care on hand, fun activities and other children with T1D just like them. A wonderful way to help your child gain confidence and meet new friends.
8. Get Involved in Research Studies
We’ve had the chance to take part in research projects through local hospitals or Diabetes UK local support group. It’s been a meaningful way to contribute to the future of T1D care, while also with other families and professionals passionate about making life easier for people living with Type 1 Diabetes.
9. Connect Through Sports and Youth Activities
T1D doesn’t stop children and teens from playing football, swimming, or joining dance class- but it does add an extra layer of planning. Knowing other families in the same situation has helped us feel supported in sports clubs and youth groups, and there are even events specifically for young people with diabetes to enjoy sports and activities together.
10. Start Your Own Micro-Community
Some of the most valuable support has come from simple connections- a Whatsapp chat with a few local parents, a friend recommending you talk to their friend who also has a child with T1D, or a meet-up in the park with families we met online. You don’t always need big events- sometimes it’s those small, consistent check-ins that make the biggest difference.
Final Thoughts
Looking back, I can’t imagine going through this journey without the incredible T1D community around us. From big fundraising events to small everyday conversations, every connection has helped us feel stronger, better informed and less alone.
If you’re just starting out, I hope these 10 ways give you a place to begin. Community has been one of the greatest supports for our family- and I know it can be for yours too.
