Balancing the Spotlight: Caring for Siblings in the Wake of a T1D Diagnosis

When a child or teen is diagnosed with Type 1 Diabetes (T1D), the impact is felt far beyond the hospital walls. It’s a major shift for the entire family- and siblings, whether older or younger, often find themselves riding emotional waves they don’t fully understand.

In the whirlwind of appointments, insulin doses, and carb counting, it’s easy for their needs to get lost in the shuffle. But supporting siblings through this time is just as vital- not only for their well being, but for the strength and resilience of your whole family.

Here’s how to support siblings in those tender first weeks and months after diagnosis.

1. Acknowledge That Their World Has Changed, Too

Siblings may not have the needles, blood sugar crashes or hospital stays- but they’re still dealing with a big change. Their routines might feel disrupted. They might sense stress in the home or worry about their brother or sister’s health. Some children become anxious, others act out or become quieter.

What helps:

• Acknowledge their feelings. Say things like, “This has been a big change for all of us” or “It’s okay to feel upset or confused.”

• Check in regularly with simple questions: How are you doing with everything? Is there anything you’re worried about?

2. Make Space for Their Emotions- Even the Tricky Ones

Jealousy, anger, guilt, fear- these are all normal reactions. An older sibling might feel like they have to be the “strong one.” A younger sibling might feel left out or wish they had more attention. These feelings don’t make them bad- they make them human.

What helps:

• Let them express emotions without judgement. “It’s normal to feel jealous sometimes. Things have been different lately.”

• Avoid phrases like “You need to be understanding”- instead invite conversation and validate their experience.

3. Keep the Routines (as Much as You Can)

In the early weeks after diagnosis, everything can feel chaotic. Siblings may worry that their needs no longer matter. Even small things- like a regular bedtime story or weekend pancake breakfast- can be deeply reassuring.

What helps:

• Stick to their usual routines where possible.

• Try to carve out one-on-one time with each child, even if it’s just ten minutes a day.

4. Involve Them- But Don’t Burden Them

Siblings often want to help- and can be an incredible source of support- but it’s important not to put too much pressure on them to “be responsible” or “watch out” for their brother or sister.

What helps:

• Invite them to learn about diabetes in age-appropriate ways: “Do you want to know what this machine does?”

• Offer choices: “Would you like to help pack snacks for school, or just know what to do if your sibling isn’t feeling well?”

5. Reassure Them with Facts

Children and teens can quietly worry- “Will my sibling die?”, “Will I get diabetes too?”, “Did I do something to cause this?” Giving them clear, honest, age-appropriate answers helps reduce fear and prevent misinformation.

What helps:

• Be clear and calm. “Type 1 Diabetes isn’t anyone’s fault. It’s not something you catch like a cold. Your brother/ sister will live a full and happy life.”

• Encourage them to ask questions any time.

• Show them people thriving with T1D (check out our Famous Faces section)

6. Watch for Signs They Need Extra Support

Siblings may not always say how they’re feeling, especially if they don’t want to add to your stress. But changes in behaviour- sleep issues, tantrums, acting withdrawn, or trouble in school- can be signs they’re struggling.

What helps:

• Keep teachers and caregivers in the loop so they can watch out too

• Consider support groups, play therapy, or simply more quiet connection time with you

7. Celebrate the Strength of the Whole Family

A T1D diagnosis can feel overwhelming- but it can also bring families closer. Over time, many siblings develop deep compassion, resilience and pride in their role.

What helps:

• Celebrate teamwork: “We’re learning how to be a great diabetes team.”

• Highlight the sibling’s strengths: “You’ve been so patient during all these changes- I really see how strong you are.”

Final Thoughts

Supporting a child with Type 1 Diabetes is a journey- and that journey is taken as a family. Siblings need love, patience and time to adjust. With open communication, reassurance and regular connection, you can help them feel secure, valued and included.

In doing so, you’re not just caring for one child- you’re building a strong, supportive foundation for everyone.